Susan Poteat presents during the PACCR workshop. (Photo by Gilles Frydman)
A few weeks ago, we had the privilege of hosting a group of ePatients, advocates and engaged industry professionals for our first Patients at the Center of Clinical Trials Workshop (PACCR). A number of Eli Lilly and Company’s drug development leaders joined the workshop to listen, learn, share initiatives and generate ideas focused on how the patient/participant experiences clinical trials and how that experience can be improved.
Though the workshop was somewhat small—30 to 40 people were present throughout the day—there was a great deal of wisdom and inspiration gained from the mashup of diverse experience and perspectives.
Happy Thanksgiving from Lilly COI! Here are are few fun and helpful apps to help you celebrate the occasion:
Thanksgiving: the most terrifying holiday of the year, even for experienced cooks. Everybody needs help. This app walks you through Thanksgiving week, step by step, so everything comes out on time and tasting great. No more overwhelming list of recipes! Just straightforward steps and a clear timeline instead. The app features the nine dishes that everybody wants to make for Thanksgiving. Choose one or all. It’ll create the timeline that takes you right up to dinnertime. [Source: CHOW]
“I would like for researchers to define a minimum amount of information that all participants in all clinical trials will get, and for that minimum to be consistent across all organizations.”
-Lane Rasberry, Clinical Trial Participant and Wikipedian
I, along with representatives from Novartis and Pfizer, announced a collaboration on November 12 at the Data to Knowledge to Action: Building New Partnerships technology conference in Washington, D.C. Our objective as a group is to build a consistent framework for clinical trial information to make it easier for patients and their families to find clinical trials that might be right for them.
By collaborating in this pre-competitive space, we hope to enable patient communities and patient-centric software companies to develop applications that help people match themselves with a study’s target profile across a variety of patient populations. We also hope to not only serve individuals looking for clinical trials, but to enroll trials faster and more efficiently—ultimately speeding drug development.
inFORM is a Dynamic Shape Display that can render 3D content physically, so users can interact with digital information in a tangible way. inFORM can also interact with the physical world around it, for example moving objects on the table’s surface. Remote participants in a video conference can be displayed physically, allowing for a strong sense of presence and the ability to interact physically at a distance. inFORM is a step toward MIT’s vision of Radical Atoms. [Sources: The Verge and MIT.edu]