E-patient Voices Can Inspire Change in Clinical Trials Reply

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The culture we will live in next month is a direct result of what people like us share today. The things we share and don’t share determine what happens next.”

 Seth Godin

In a recent post on his blog, successful marketer and entrepreneur Seth Godin says that we are what we share. He believes that sharing our stories and ideas takes courage, and that it is “a generous way to change your world for the better.”

The world of clinical trials is one that still could use some change. Many trials struggle to recruit patients, which hinders our ability to get important treatments to patients in a timely manner. The reasons for struggling enrollment are complex, but the root cause is often a lack of awareness. As an industry, we’ve undertaken various initiatives to increase awareness, but these initiatives have had limited impact to date. And maybe that’s because it’s not us who potential trial participants most want to hear. Instead, maybe it’s fellow patients.

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Happy Holidays From the Lilly Clinical Open Innovation Team 1

Reindeer Beagle

Reindeer Beagle by Mark Evans is licensed under CC-BY-2.0

Thank you to everyone who has made 2014 such a wonderful year! We have thoroughly enjoyed the conversations with you all and truly value your perspective. The Lilly Clinical Open Innovation (LCOI) team looks forward to continued interaction with you in 2015.

As we bring this year to a close, we’ve had some time to review our recent work, some of which we previously shared here on our blog. We sponsored a Patient Engagement App Challenge, which eventually led to the LVJJ website. The LVJJ website is a pilot project to improve how we present information to patients and caregivers on study websites. We’ve also progressed on our target profiles project, which is aimed at building a consistent framework for clinical trial eligibility criteria. And we created the Lilly Innovation Site Advocacy Group, providing us with access to great feedback from research sites.

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A Look Back at the Top 5 Posts of 2014 2

Thus far in 2014, we’ve published 37 blog posts and attracted over 15 thousand visitors to the Lilly Clinical Open Innovation (LCOI) blog. Now that 2014 is drawing to a close, we’ve compiled a list of our most popular posts this year. Take a look and see if there are any that you missed.

1. Patient Participation in Clinical Trials Infographic

Our most popular post of 2014 featured an infographic about clinical trial participation. The Patient Participation in Clinical Trials infographic walks viewers through some of the reasons why people do and do not participate in clinical trials. While a relatively small percentage of oncology patients were aware of relevant clinical trials when they considered treatment options – only 16% – the overwhelming majority of clinical trial participants would consider joining another trial in the future.

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Rahlyn Gossen’s Unique Perspective On Clinical Trials Reply

Rahlyn GossenWe’re privileged to be working with Rahlyn Gossen, founder of Rebar Interactive, a digital strategy consultancy serving the clinical research industry. Rebar Interactive creates empowering (and award-winning) digital experiences for patients and professionals. Rahlyn’s digital marketing expertise spans a variety of areas, including search, social media, and mobile. Her work is infused with a patient-centric perspective, honed during Rahlyn’s time as a clinical research coordinator.

Rahlyn publishes a widely-read clinical trial blog and newsletter focusing on digital strategy, the patient experience, and innovation. The same topics are explored in 140 characters or less on Rebar Interactive’s Twitter account. Rahlyn also serves on the editorial advisory board of Applied Clinical Trials. Rahlyn is a proud New Orleanian and a connoisseur of cute online animal videos, particularly those of the feline variety.  

Tell me a little bit about yourself, and the path you’ve been on to make clinical research better.

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