Time for Partnership 1

Partnership in CTs

It is spring time and that can only mean it is time for partnership.  As in Partnerships in Clinical Trials conference.  Next week, some 1500+ leaders in clinical trials will gather to discuss clinical trial transformation and ways to improve clinical development.  I’m honored to have been invited to speak and share an update on our Lilly COI work.  I’ll also announce an upcoming public challenge so stay tuned!

The need to change the status quo around clinical development to arrive at better treatments for patients has never been greater, and it’s exciting to participate in creating the future of the drug development.

As a preview to the conference, the coordinators selected a few people to highlight and you can hear a short interview on the conference blog site.  I enjoyed sharing not only how an open innovation mindset and implementation can help clinical development but also some thoughts on how my 10 years health care development in Madagascar is parallel to the current pharma challenges.

Conferences like this are great times to decompress from the busy-ness of daily implementation activity.  I’m looking forward to reconnecting with a number of people and meeting new contacts such as Tomasz Slabinski, Nick Dyer, Rahlyn Gossen, and many others.

If you are attending, please reach out to me and I’ll be happy to connect.

I am also honored to have been nominated by industry peers for Clinical Trial Innovator of the Year.  I have great respect for my fellow nominees and look forward to connecting with them again.  The conference should be a great learning and networking opportunity.

See you in Orlando!

Disney’s EPCOT Roots Host Big Data Conference Reply

Photo Credit: Stuck in Customs via Compfight cc

Orlando, Florida, was recently host to the eHealth Initiative Big Data conference. Tabbed “Leading IT Forward,” the conference brought together a variety of stakeholders to discuss issues related to data interoperability, analytics, and sharing of best practices.

What is meant when someone uses the term ‘Big Data’? Wikipedia states that Big Data:

is a collection of data sets so large and complex that it becomes difficult to process using on-hand database management tools or traditional data processing applications. The challenges include capture, curation, storage,[3] search, sharing, analysis,[4] and visualization.

Big Data as it applies to patient health has its own set of challenges. The lack of interoperability between different EHR vendor platforms prevents a complete longitudinal view of the patient necessary to tell the full health story.  Just think of the gap in EHR communication that exists between the outpatient and inpatient care delivery systems as one of many examples. More…

Meet Subject #0008: A Patient Perspective On Clinical Trials 13

The following blog post is by Jeri Burtchell.

Jeri is a renowned patient advocate, with first-hand experience participating in clinical trials. Her ideas, passion and willingness to share via her blog and in speaking engagements help to clarify how clinical research works, its value, and where there needs to be further focus on the needs of the patient.  

The opinions expressed by Jeri are her own, and do not necessarily reflect those of the Lilly COI Team.

Subject #0008

In mid 2007 I laid on my back staring at the ceiling, trying to talk myself out of suicide. After eight years of battling multiple sclerosis I was sure there was no hope of ever seeing an improvement in my quality of life. The thought of my family’s certain sorrow over my tragic death forced me to find an alternative. I pushed myself to make one last effort at self-advocacy and hopefully change my life. I was ready to entertain drastic measures.

Allow me to introduce myself. My name is Jeri Burtchell, but from 2007 until 2011 I was also known as Subject #0008. More…