At Lilly COI, our intent is to transform clinical development through patient focused efforts, and explore open innovation methods to do so.
Our overall approach is multifaceted: We’re learning from patient advocates about how to use social media to connect online with patients, caregivers and communities to bring valuable insights into clinical research; we attend conferences and have hosted a workshop to drive shared learning and generate ideas; and, we’ve created public prototypes and put out the open LCOI-API to surface information about clinical trials. Most recently, we announced a collaboration with other pharma to develop a capability to enable patients to match to clinical trials.
We’ve also sought out opportunities to source innovative ideas to help move the industry towards a common goal of improving the patient experience. One such way has been our sponsorship and promotion of challenges.
The Latest: Patient Engagement App Challenge
In November we announced the winners for the Clinical Trial Redesign Challenge live at our Patients-at-the-Center of Clinical
Research conference. The challenge was for designers and developers to re-imagine clinical trial information in a patient-centric way, and to support patients who are considering enrolling in a study.
Continuing in our innovation work, we are excited to announce our joining with a number of partners to sponsor the Patient Engagement App Challenge. UBC, Enlight BioSciences the Partnership In Clinical Trials conference and Lilly COI are calling for innovative applications that can help patients who are in a clinical trial.
According to a preliminary study recently published in PLOS ONE, patients “understand clinical trials better with some interactive help.” We recently stumbled upon a great example of this from the U.K. in the form of video game that walks a potential volunteer through each step of a clinical study.
UK seeing increase in clinical trial participation
Since its inception several years ago, The U.K.’s National Institute for Health Research’s Clinical Research Network (NIHR CRN) has focused on reducing the red-tape surrounding clinical trial set-up and increasing the number of British citizens participating in clinical trials. From 2009 to 2013 clinical trial participation in the U. K. has increased from 454,138 to more than 630,000. That’s an increase of more than 38 percent in just a few years’ time.
While it’s difficult to pinpoint exactly why enrollment has grown so much recently, it appears that a concerted effort to educate the public about the importance of clinical research may be playing a role.
The following blog post is by Lane Rasberry.
Lane has participated in more than 40 clinical trials as a healthy volunteer, as well as worked on the research team conducting clinical trials for the University of Washington. He’s a fan of clinical research, and has served on community advisory boards for clinical trials. He’s regular Wikipedia contributer and member of WikiProject Open Access as well as WikiProject Medicine. Lane works with various patient and research participant rights groups as well as the Open Knowledge Foundation to promote and advance science in the Seattle area. As such, Lane brings a unique, multi-dimensional perspective on clinical trials.
The opinions expressed by Lane are his own, and do not necessarily reflect those of the Lilly COI team.
I became interested in clinical trials when I moved to Seattle from rural Texas at the age of 20. I had no job skills, and no experience or real interest in clinical research.
One day I saw an ad offering the equivalent of minimum wage for my time as a participant in a clinical trial, and I took the opportunity. Soon after, I started studying chemistry in college and joined more trials. I participated in about 40 of them over a period of years.
After I graduated from the university, I took a job conducting clinical trials for one of the school’s health departments and joined a community advisory board for an organization’s clinical trials.
Through my experiences, I became a supporter of clinical research; and, I encourage other people to participate in clinical trials. I also encourage researchers to appreciate and support their trial participants.
Better Access to Information
As a research participant, what I found myself wanting most often was better information about the trial. Before starting the enrollment process, I wanted to learn more about the study, but my options for that were limited.
Photo adapted from http://www.acpinternist.org/caption
We live in a time of rapidly progressing change, with technology transforming industries and directly affecting lives. One way in which technology is enabling improved healthcare is through telemedicine:
Telemedicine is the use of telecommunication and information technologies in order to provide clinical health care at a distance. It helps eliminate distance barriers and can improve access to medical services that would often not be consistently available in distant rural communities. (Wikipedia)
Historical research has shown the importance telemedicine can play in the healthcare setting. A 2001 pilot study conducted in nursing homes suggested that use of telemedicine decreased the number of visits to the Accidents and Emergency Department by 9% and decreased the admissions to the acute care hospital setting by 11%. And that’s in 2001!