As of Oct. 4, services have been restored to ClinicalTrials.gov, but at a minimal capacity. According to an update to their home page, “Information will be updated to the extent possible, with priority given to processing registrations of new trials and critical updates to existing entries, such as trial status and contact information for enrollment. The agency will attempt to respond to urgent operational inquiries.”
If you are currently using our API to fuel your web or software applications, please note that due to the recent U.S. government shutdown, the data you receive may not be completely up-to-date.
Our API draws data sourced from ClinicalTrials.gov—a service of the U.S. National Institutes of Health—and transforms it into a format developers of web applications can more easily use. According to an update recently posted to the site, they may not be able to provide any updates until normal business operations resume:
At Lilly COI we are lowering the barriers that exist between clinical information and the people who need that information the most. We’ve shared how our Clinical Collections tool is a much easier way to search for and pull together relevant clinical trial registry information.
But we’ve been thinking: We want to make public clinical research easier to get at, right? Search is one way…but instead of search, what if we made it so that data finds the patient?
A Lot of Data
From the moment a patient learns that they have a serious illness or that their care-giver wants to try a new treatment, they are inundated with information, relevant and otherwise. Regardless of the size of the task, however, most patients are still highly motivated to learn as much as they can as quickly as they can. Accumulating relevant clinical information that could impact their health is crucial.
Clinicaltrials.gov is a registry with a lot of great information, and there are plenty more sources of clinical research information. As we look to more clinical trial sites, medical journal collections, drug labels and other digital sources, we open the doors to more knowledge – but we open the flood-gates of data on patients as well. So how can a patient get at the information they need without rowing through the sea of data?
The Right Data for the Right Patient
Big week for Data
Britain and the EU open data for taxpayer financed research.
A revolution, then, has begun. Technology permits it; researchers and politicians want it.
Research Articles go live with their associated data. Is this the future of academic publishing?
This is a list of the APIs from their various sub-organizations. We currently use clinicaltrials.gov to serve up data to Clinical Collections, but this list lays out convenient opportunities for more data mashups.