Why 23andMe Is About More Than You And Me 4

Advances in computational science and biology enable us to understand ourselves in ways that we could not just a few years ago.  Co-founded in 2006 by Anne Wojcicki, wife of Google co-founder Sergey Brin, 23andMe has emerged in the digital age to provide a view of our personal genetics - all for less than $100!

23andMe is evidence of Moore’s Law at work, and, in addition to giving unprecedented insight into our personal genome, efforts like 23andMe have innovative potential to change the way drugs are found and developed.

Thanks to Moore’s law, the cost per Human Genome is falling rapidly. More…

We Like… Reply

How Open API Movement Can Help Your Brand

When executives are challenged to innovate, they often try to take old routes to new business ideas. While analyzing innovative companies, we’ve found that it’s not just the organizational culture or leadership that creates innovation — it’s the willingness to allow consumers and developers to identify new uses for existing data and infrastructure via open APIs.

Alcatel Lucent Releases API Creation Methodology through Creative Commons

Alcatel’s lifecycle methodology moves the conversation forward into solid business, legal and marketing approaches that are critical to successfully deploying APIs and building healthy developer driven ecosystems. This move shows the API industry has matured and is ready for prime time. And the fact that Alcatel released the methodology under a creative commons license shows they get the true essence of the API movement.

More…

Hearing Patients’ Voices 1

Regina Holliday’s husband Fred died of kidney cancer on June 17, 2009.  His untimely death was a tragedy, but it served to reveal a gap in today’s healthcare landscape: patients’ access to their own medical data.

Telling her story, Regina recounts a lack of communication from Fred’s doctors and significant roadblocks to crucial information about both his history and the state of the cancer.  Not long after his diagnosis, Regina lost her husband.  But in that, she embraced a mission – and started a movement.

The Walking Gallery” is a big part of that movement.  It refers to striking, full-color mural scenes Regina has depicted in acrylic paint on the backs of suit jackets and lab-coats.  The painted garments tell myriad stories: from patients’ struggles to health care enigmas, to reform ideas for national and global issues.  They are worn to conferences and events by a variety of health advocates and friends of the movement.

Regina’s message is that without patients’ unique stories and perspectives, information that the public receives about disease, treatment options, and the whole of patient care is incomplete. More…

Electronic Medical Records Startups Are Powered By Patients Reply

iPad

In our group, we speak a lot about how unleashing data and mashing it up can transform clinical development and healthcare in general. Going further, one of the most exciting opportunities to improve healthcare is the sharing of health records between health care providers and patients.

This is why it’s exciting to see a new batch of medical technology startups committed to adding efficiency to the data sharing process, and in a move we hope to see more of – putting medical records in the hands of those who own them outright – patients!

One example, as profiled by ReadWriteWeb recently is Drchrono, an exciting iPad service that allows doctors to work with medical records and perform functions such as:

  • Scheduling an appointment
  • Input medical details
  • e-prescribing drugs
  • billing
  • Medical Speech to Text technology

The most important feature in our view is the ability for patients to get a copy of their medical records via Drchrono. The app and its usage is growing – according to the company, 50,000 doctors and 400,000 patients are registered with the service.

There are a number of other startups attacking the electronic health record industry, as further noted by the ReadWriteWeb article.

KeyboardMuch of the innovation in this area of medical technology is due to the HITECH Act, which gives physicians incentives for using electronic records. However, the health consumer and patients rights communities are excited about the HITECH Act because by digitizing these records, the data can now be made available to consumers as appropriate.

After all, our medical records belong to us, and in most cases, medical records have been out of touch and inaccessible to in any meaningful way. As more data access is responsibly given to health consumers, we can begin to see services and applications that enable us to take ownership of our health care. For example, imagine an instance where after learning about a medical condition, you also learn about clinical trials you qualify for based on your medical history and location.

The idea of health consumers having access to their records has been championed by John Wilbanks, who gave an inspiring TED talk on the subject in June. Also, Wilbanks has built WeConsent, a site dedicated to the idea of medical commons, a way for people to gather their medical data and share it freely.

This is what data access is all about!

Photo credit: juhansonin and jfcherry